Blog

Each year we recognize Lynch Syndrome Awareness Day on March 22 to increase understanding of one of the most common yet underdiagnosed hereditary cancer syndromes. In 2026, this occasion focuses on encouraging family history reviews, genetic testing, and increased surveillance for early cancer detection. Background InformationUnlike some ...

Why listening, consistency, and compassion matter as much as treatment for families living with rare disease. Aisha's mother knows the signs before anyone else does. The way Aisha grows quiet. The way she holds her arm close to her body. The subtle shift that means pain is coming. By the time they reach the emergency department, Aisha's pain is sev...